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Spinal Muscular Atrophy Awareness

Complete description: ***For more information or if you would like to donate to this cause you can do so at curesma.org.*** Our Xamara was diagnosed with SMA II late Aug. 2010 when she was 11 months old. We noticed the wea
Thematic Section: Education
Duration: 00:02:33.750
Other materials on this topic: Spinal Muscular Atrophy SMA Hypotonia Muscle weakness progressive disease terminal cure faith hope love onetruemedia

Spinal Muscular Atrophy Type 1 - Dr. Bob Leshner

Complete description: Pediatric neurologist, neuromuscular clinician, clinical trials researcher, and member of FightSMA's Scientific Advisory Committee, Dr. Bob Leshner discusses SMA type 1, the most severe form of Spinal
Thematic Section: Nonprofits & Activism
Duration: 00:07:24
Other materials on this topic: spinal muscular atrophy disease health researcher nonprofit charity sma medical fightsma sma type 1

Living with Spinal Muscular Atrophy

Complete description: SMA is, oftentimes, referred to by medical professionals as a 'death sentence'. I made this informational video to remind everyone, especially medical personnel, that life is what you make of it. Some
Thematic Section: Nonprofits & Activism
Duration: 00:03:25.500
Other materials on this topic: sma spinal muscular atrophy education information onetruemedia

FightSMA Webcast 2012 - Spinal Muscular Atrophy

Complete description: Webcast of a full panel discussion at the FightSMA Annual Research Conference 2012, the premier research conference focused on a cure for spinal muscular atrophy. SMA is the leading genetic killer of
Thematic Section: Nonprofits & Activism
Duration: 01:09:59.250
Other materials on this topic: sma spinal muscular atrophy disease children sick research science parents parenting

A new drug for Spinal Muscular Atrophy

Complete description: CSHL Professor Adrian Krainer has developed a new drug for Spinal Muscular Atrophy (SMA), a devastating neuromuscular disease, in collaboration with California-based Isis Pharmaceuticals. The drug is
Thematic Section: Science & Technology
Duration: 00:01:30
Other materials on this topic: Spinal Muscular Atrophy SMA Adrian Krainer clinical trial

Spinal Muscular Atrophy Oligo Part 1

Complete description: www.ncbi.nlm.nih.gov www.ncbi.nlm.nih.gov tpx.sagepub.com www.sciencedirect.com online.liebertpub.com
Thematic Section: Nonprofits & Activism
Duration: 00:06:16.500
Other materials on this topic: Spinal Muscular Atrophy SMA SMA Type 1 SMA Research Oligo

Children's Miracle Network: Spinal Muscular Atrophy - Cornelius "Case" Brewer

Complete description: In Loving Memory of Cornelius "Case" Brewer
Thematic Section: Comedy
Duration: 00:04:45.750
Other materials on this topic: SMA Spinal Muscular Atrophy

Lets Talk Spinal Muscular Atrophy Research

Complete description: Dissecting SMA research articles, the good the bad and the ugly. Discovery medicine article..... www.discoverymedicine.com Nature article.... www.nature.com Blog Life Sci VC .... lifescivc.com
Thematic Section: Nonprofits & Activism
Duration: 00:13:15
Other materials on this topic: VPA Gene Therapy Oligoneucleotide quinazoline

Spinal Muscular Atrophy Oligo part 2

Complete description: My take on the Oligo research for SMA, based on the published research articles. "Antisense Oligonucleotides Delivered to the Mouse CNS Ameliorate Symptoms of Sever Spinal Muscular Atrophy" stm.scienc
Thematic Section: Nonprofits & Activism
Duration: 00:17:42.750
Other materials on this topic: Spinal Muscular Atrophy SMA SMA Type 1 Oligo SMA Research

RISIND - Spinal muscular atrophy (SMA)

Complete description: "Diagnosis, treatment or cure of inherited monogenic diseases are of high interest by the society. Neurological disorders like spinal muscular atrophy (SMA) is among the most important ones. We have u
Thematic Section: Science & Technology
Duration: 00:01:51
Other materials on this topic: spinal muscular atrophy SMA

Spinal Muscular Atrophy Type 1, Amanda 7 months old

Complete description: Amanda "speaking" when mommy tickles her and laughs when daddy speaks to her. Amanda passed away May 13th 2012 from respiratory complications from SMA at 21 months old. www.amandacardoze.com
Thematic Section: People & Blogs
Duration: 00:01:27.750
Other materials on this topic: MVI 3966

Spinal Muscular Atrophy Type 1, Amanda 20 months old

Complete description: Reading a book before bed. Every night I would read her a book then tell her she had her paci, her bipap, her music, her bunny and that I had read her book. 5 minutes later (sometimes with a little ha
Thematic Section: People & Blogs
Duration: 00:01:45.750
Other materials on this topic: IMG 0105

Spinal Muscular Atrophy Type 1, Amanda, 19 months old

Complete description: This is Amanda painting independently. She is better than what the video shows but since I was holding the camera and the paper I wasn't positioning it the right way :)
Thematic Section: People & Blogs
Duration: 00:01:39
Other materials on this topic: MVI 8468

Help Appeal for Spinal Muscular Atrophy and Diabetic Children

Complete description: Help Appeal for Spinal Muscular Atrophy and Diabetic Children
Thematic Section: Education
Duration: 00:03:25.500
Other materials on this topic: yt:stretch=16:9 Arrahman Arraheem Alrehman Alrahim babar Chaudhry farhan ali agha Najam Sheraz Khurram Gul

About Spinal Muscular Atrophy

Complete description: This is a bit about me
Thematic Section: People & Blogs
Duration: 00:06:24.750
Other materials on this topic: Spinal Muscular Atrophy

'Avery's Bucket List': Five-Month Old Girl With Spinal Muscular Atrophy Dies

Complete description: 'Avery's Bucket List': Five-Month Old Girl With Spinal Muscular Atrophy Dies | ABC News Blogs - Yahoo! gma.yahoo.com via @YahooNews "We had several days of sitting in shock and crying and then we pull
Thematic Section: News & Politics
Duration: 00:00:54
Other materials on this topic: 'Avery's Bucket List': Five-Month Old Girl With Spinal Muscular Atrophy Dies

Gala of Hope to Cure Spinal Muscular Atrophy (SMA)

Complete description: The First Annual Gala of Hope to Cure SMA was held in Hollywood, Florida, with the South Florida Chapter on November 17, 2011. The event raised over $130000 for Families of SMA! Click here for more de
Thematic Section: Nonprofits & Activism
Duration: 00:09:26.250
Other materials on this topic: Spinal Muscular Atrophy SMA

Spinal Muscular Atrophy Socio-Psychological Investigation

Complete description: Spinal Muscular Atrophy Socio-Psychological Investigation
Thematic Section: Science & Technology
Duration: 00:05:29.250
Other materials on this topic: Spinal Muscular Atrophy Socio-Psychological Investigation

Spinal Muscular Atrophy, That's What I have!

Complete description: Before I continue discussing the topic of assisted suicide and euthanasia, I thought I had better explain the disability that I was born with, so you know where I am coming from. ______________ walkin
Thematic Section: People & Blogs
Duration: 00:02:45.750
Other materials on this topic: disabilities spinal muscular atrophy als amyotrophic lateral sclerosis encouragement peer support advice abundant living neuromuscular disorders canada anita berglund craig berglund autobiography opinions choosing life

SMARD(Spinal Muscular Atrophy Respiratory Distress) Eli's Story.

Complete description: Spinal Muscular Atrophy with Respiratory Distress is a "Rare" terminal neurodegenerative disease that affects the motor neurons and causes progressive muscle wasting (deterioration of feet, legs, hand
Thematic Section: Nonprofits & Activism
Duration: 00:03:39
Other materials on this topic: SMARD SMA neurons disease muscle wasting paralyzed 2months eli infants terminal respiratory distress

Spinal Muscular Atrophy, Type 1, Amanda, Welcome 2012

Complete description: Buena Ventura Happy New Year 2012 - created at animoto.com
Thematic Section: Film & Animation
Duration: 00:02:51
Other materials on this topic: video slideshow animoto

Emily @ therapy doing neck exercises (Spinal Muscular Atrophy)

Complete description: This is incredible. Emily is wearing her TLSO and pulling her head back upright all on her own. Even though she has Type I Spinal Muscular Atrophy (SMA).
Thematic Section: People & Blogs
Duration: 00:00:52.500
Other materials on this topic: Spinal_muscular_atrophy SMA Therapy TLSO

Spinal Muscular Atrophy Association of Australia

Complete description: This is a video created by SMA Australia highlighting those Australian babies who have lost their battle to SMA Type 1.
Thematic Section: Nonprofits & Activism
Duration: 00:02:19.500
Other materials on this topic: SMAA

Evans-Spinal Muscular Atrophy

Complete description: A son with Spinal Muscular Atrophy :(
Thematic Section: People & Blogs
Duration: 00:03:18.750
Other materials on this topic: Evans Spinal Muscular Atrophy

Spinal Muscular Atrophy, Type 1, Amanda 15 months old

Complete description: Amanda swimming
Thematic Section: People & Blogs
Duration: 00:01:06.750
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Living with Spinal Muscular Atrophy in India - Guest Blogger

Complete description: Sarah Levis reads a posts from her award-winning blog, "Girl With The Cane". For more information about Sarah and "Girl With The Cane", please visit www.runningsteps.ca.
Thematic Section: People & Blogs
Duration: 00:05:01.500
Other materials on this topic: pratyush nalam SMA India physical disability disability issues Sarah Levis Running Steps Girl With The Cane

Spinal Muscular Atrophy Type 1, Amanda 11 months old

Complete description: Amanda playing in her Ipad.
Thematic Section: People & Blogs
Duration: 00:01:02.250
Other materials on this topic: MVI 5940

Nora counting with Spinal Muscular Atrophy, SMA - www.Goodentree.com

Complete description: Nora counting from 1 to 9 and then 9 to 1. She has a hard time properly pronouncing the numbers but if you listen close enough you can hear the different inflections she uses - like using to quick sou
Thematic Section: Entertainment
Duration: 00:02:45
Other materials on this topic: Spinal Muscular Atrophy SMA Nora Goodentree Counting teach class speech talking type-1 terminal disease math therapy Class (education) Education School Lessons Learn

Families of Spinal Muscular Atrophy PSA

Complete description: Even with the success that Actor Michael Santi is having, SMA is a cause that he is determined to draw attention to and will always find the time to join in the fight to find a cure.
Thematic Section: Nonprofits & Activism
Duration: 00:02:09.750
Other materials on this topic: SMA Spinal Muscular Atrophy
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